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Kyle Jordan

Disability Visibility: Beautifully raw and unapologetic

Commenté au Royaume-Uni 🇬🇧 le 2 mai 2021

Disability Visibility: First-Person Stories from the Twenty-first Century is a collective anthology of short essays, interview transcripts, articles, blog posts, creative prose and more edited by Alice Wong to mark the thirtieth anniversary of the Americans With Disabilities Act (ADA). What unfolds within its pages is nothing short of a celebration of the universal and total nature of the disabled experience; it is raw and it is painful, but it is also beautiful and inspiring. Once you start, it is hard to put down.

Split across four sections - Being, Becoming, Doing and Connecting - each contributor leaves a piece of themselves within these pages, their voices distinct and experiences vivid whether they be expressed through ten pages or just three. This diverse range of perspectives, and mediums through which they're shared, makes this anthology a true demonstration of what intersectionality really means without even having to use it as a buzzword. It succeeds absolutely in what it sets out to do; to demonstrate the undeniable value of disabled lives and experiences - particularly those lives and experiences that are also shaped by colour, gender and/or sexuality - and why not only the world will always have us, but why the world needs us. Every essay is accessible - and clearly labelled with content warnings where difficult subjects are discussed - and is worth reading at least once, but I can see myself returning to this anthology to re-read it many times in the coming years.

Whether you're disabled or no, I think this is a critical and necessary read for anyone who is passionate about social justice, or who wants to gain a more intimate understanding of themselves and the human condition. The wisdom and rawness within these pages is something we can all grow from, and may we carry them forward into our communities and from humble seeds grow into mighty oaks, intertwined in interdependence from roots to branches. In my own journey as a young disabled man, I feel as if I'm just starting to reach the canopy, in no small part thanks to the richness of this book.

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Ann Marie Norrid

Required reading for humans

Commenté aux États-Unis 🇺🇸 le 1 avril 2021

Achat vérifié

This eye-opening compilation should be required reading for all humans.

Alice Wong has brought together an incredible group of people with disabilities to tell their stories. She began this project because she wanted to hear more about the disabled experience from diverse, everyday folks.

So many times in our culture when we think of disability we think of Christopher Reeves in his wheelchair or Dustin Hoffman acting in Rainman. Much of what we see in our culture’s examples of disability are completely lacking in diversity. Not only that, but the examples are almost always visible, which is simply not always the case. Many are invisible and our society often invalidates them because of this.

Some of my favorite chapters include:
-Harriet McBryde Johnson who has a neuromuscular disease debates with a Princeton professor who believes she shouldn’t have been born.
-Jeremy Woody speaks to the challenges of being deaf in prison.
-Sky Cubacub describes how limited (and honestly ugly) current adaptive clothing is and how they are changing this.
-Keah Brown expresses the happiness and love in her life, even though society tells us that joy is impossible for disabled people.
-Shoshana Kessock, who has bipolar disorder finally gives herself permission to be healthier and take her medicine instead of feeling like she owes the world her manic creativity.
-Britney Wilson describes the perilous journey of NYC’s paratransit service.

This book shows such richness and joy and challenges and life in each person’s story. They are not gloom and doom like we are lead to believe is nonstop for them. It’s important for us to examine the biases we may hold against those that are differently abled.

This powerful book does exactly what the title says. It makes everyday disabled experiences more visible to the world. I cannot recommend this book enough. Please give this a read.

22 personnes ont trouvé cela utile

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Natalia

Amazing Collection

Commenté aux États-Unis 🇺🇸 le 3 novembre 2022

Achat vérifié

I really enjoyed every single story in this collection. I was amazed at the wide range of disabled individuals' stories that are included. I resonated with a lot of the sentiments and found myself moved to tears, anger, happiness, etc. I appreciate how these stories range from strictly informative to more prose-like pieces. I learned a lot through this book and I believe everyone disabled or not disabled should read this book to gain a better understanding of individual stories and how many overlap in experience, discrimination, joy, etc.

2 personnes ont trouvé cela utile

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Corrine Geiger

Every now and then, a book opens your mind in startling and useful ways.

Commenté aux États-Unis 🇺🇸 le 29 décembre 2022

Achat vérifié

At times hard to read, but so glad to become aware of these issues.

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Amazon Customer

This is so, so, so good/useful/etc. book

Commenté aux États-Unis 🇺🇸 le 29 septembre 2022

Achat vérifié

If I had to pick a book from this year's reading list that has made most impact on me, this is the one. (I started out with the audiobook version, and the performance is excellent, too. I'd even argue that most of these stories are better when you listen to them.) Strongly recommend.

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Nibras Hussain

A Prized Possession!

Commenté aux États-Unis 🇺🇸 le 9 novembre 2022

Achat vérifié

Vocal stories from real people of the disabled community. This is a must-read. I’m glad to have this book as a compulsory read for College this semester.

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caleb sellers

Worth The Read

Commenté aux États-Unis 🇺🇸 le 29 novembre 2021

Achat vérifié

This book was assigned to me for my Cyborg Theory & Practice course at Florida State University, and I am so glad that it was. This collection of works of disabled writers has allowed me to finally get a chance to see the ideas, perspectives, and minds of these individuals that I have seen little exposure of in my education of literature. Wong does an exceptional job of preparing you for these essays in her introduction, and she, as well as every other writer in this book, challenges able-bodied individuals to understand these issues and use their time, effort, and ability towards the cause. Exceptional read!

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Amazon Customer

Very important book

Commenté aux États-Unis 🇺🇸 le 4 septembre 2021

Achat vérifié

Truly, a must-read. It opened my eyes in so many ways. It is such a balanced look into the many (MANY) ways this world does not function with people with disabilities in mind. It blew my mind, made me angry, made me feel a lot of emotions, and made me realize how little I know. And especially how deeply my able-bodied privilege insulates me from so many daily dehumanizing challenges. But the book also gives voice to the general badassery that is found in the disabled community. There are essays from leaders whose voices should be front and center in the quest for true equity. A really wonderful read.

8 personnes ont trouvé cela utile

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Berni

It may take you out of your comfort zone and that's a good thing

Commenté aux États-Unis 🇺🇸 le 22 septembre 2020

Achat vérifié

This is a hard book to rate as it's not the easiest or most comfortable read. I can't say I liked it a whole lot as it's not fun, but it is important to be aware of issues and how current and former policies impact people's lives.

This book contains stories from people with a variety of disabilities: those born with severe physical disabilities, those who became disabled as they grew up, those suffering with mental illness, and those who have both physical and mental illnesses or are neuroatypical.

It covers stories from people with diseases you don't think about much: Lyme disease survivors, EDS, etc., as well as "marathon" diseases such as cystic fibrosis and muscular distrophy.

It's a book of hope and rejoicing in your life, no matter what you have to continue to overcome.

21 personnes ont trouvé cela utile

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Suzanne D

I have not read this book but….

Commenté aux États-Unis 🇺🇸 le 4 novembre 2021

Achat vérifié

I am a high school special education teacher. I bought this book for my students to read. I placed it on my desk, and it has not come back since I brought it in. My students enjoy reading it so much. One student told me she felt that for the first time, she was reading about her own struggles and felt hopeful for the first time.
I hope at some point the book makes it back to my desk, and I can actually read it, but for now I am confident in giving it five stars.

8 personnes ont trouvé cela utile

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3 étoiles		3%
2 étoiles		1%
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